Pumping Insulin's Journal|
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Below are the 20 most recent journal entries recorded in
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|Sunday, December 11th, 2011|
Medtronic remote battery
Does anyone know how to get the case on the medtronic remote open in order to change the battery? I'm afraid I'm going to break the thing trying to force it open - thanks!
|Friday, December 2nd, 2011|
Anyone using an app to log your daily info? I'd love to hear what you're using and how it's working for you. It would need to be comparable with iPhone.
Type 1; pump user
Posted via LiveJournal app for iPhone.
|Thursday, April 21st, 2011|
Question for minimed CGMS users
have you ever tried to use expired sensors? i have some unused sensors that have been stored in my bedroom closet (so room temp) which expired 3-6 months ago. I want to give the cgms another shot... and i feel guilty tossing the unused (but expired) sensors. so, any experience/opinions on this? I have unexpired sensors as well and i know it makes sense to just use those... but like i said i feel guilty wasting the others.
|Saturday, April 16th, 2011|
Supplies available for a good home
I just switched to a Ping from my Minimed and have several boxes of Minimed supplies available to a good home:
- 2 Boxes of Quick-set infusion sets, 23 in. (9mm)
- 2 Boxes of Quick-set infusion sets, 43 in. (9mm)
- 6 Boxes of Paradigm Reservoirs, 3 ml (for the 722 - these will not fit the smaller pump size)
|Saturday, March 12th, 2011|
|Sunday, March 6th, 2011|
hey! anyone ever do or doing Weight Watchers?
|Thursday, February 3rd, 2011|
Hula Hooping with a Pump
I'm not a pumper but will be at some point (please don't get on my case about pumping - after 24 years living with diabetes, I'll get there when I get there).
I am an enthusiastic hula hooper and also do a lot of events with an amazing group of T1s in Canada called Connected In Motion (CIM): http://www.connectedinmotion.ca/
. If you're in Canada or near the border, join us at an event - you'll meet an amazing group of T1s and have the time of your life!
Since I love hooping so much, I'd like to help CIM organise a hula hooping day but, as most CIMers are on pumps, I'm wondering if anyone can share their hooping with pumps experiences with me.
Thanks in advance!
Amanda Current Mood: energetic
|Tuesday, September 14th, 2010|
JDRF and Adults with Type 1
We've discussed on here before that JDRF often focuses so heavily on children with diabetes that they provide little resources for these children once they grow up to become adults
with type 1 diabetes (or for people that are diagnosed with T1 as adults). Well, one blogger took action, and JDRF noticed. (It took them a few months, but hey - better late than never!) The blogger is Scott Strange, and this is his "Open Letter to JDRF": http://strangelydiabetic.com/2010/07/13/an-open-letter-to-the-jdrf/
Here is JDRF's initial response: http://juvenation.org/blogs/advocacy/archive/2010/09/13/jdrf-advocacy-and-the-adult-type-1-audience.aspx
Scott's guest post on SixUntilMe discusses a conversation he had with JDRF after his first post: http://sixuntilme.com/blog2/2010/09/guest_post_after_an_open_lette.html#comments
And here is part two of JDRF's response: http://juvenation.org/blogs/advocacy/archive/2010/09/14/part-2-jdrf-advocacy-and-the-adult-type-1-audience.aspx
Finally, Scott's "part II" followup to the SixUntilMe post: http://strangelydiabetic.com/2010/09/14/after-an-open-letter-the-jdrf-opens-up-%e2%80%93-part-ii/
Here is our chance! JDRF is encouraging us to send comments their way: what they are lacking for adults with type 1, how they can improve advocacy for adult type 1s, resources they provide us, etc. You can post comments at Scott's blog or one of the two Juvenation.org links above.
I have always had a great experience with my local JDRF chapter; we even have an "Adults with Type 1 and they Significant Others" group that meets for dinner every few months. But I know the national organization and many other local groups are almost exclusively child-focused. I'm so glad someone addressed the issue, and JDRF responded, ready to listen.
(cross-posted to diabetes, insulin pumpers, and insulin whores)
|Thursday, June 17th, 2010|
Omnipod vs. Animas Ping
Hey everyone - I'm a T1 and I've made the big decision to go on the pump. After my early research it looks like the Omnipod or the Animas Ping would work for me. I see a lot of complaints online about the Omnipod pods failing, but my CDE says her patients on it like it. I want a wireless controller, fishing the pump out of my clothes and pushing buttons on it would not work for me. Any thoughts you have on either of these, or advice for making the decision, would be a big help. Thanks!
Feb. 17 2012 - disabled comments because of all the spam coming in. Hope this is okay with the community maintainer. Current Mood: okay
|Tuesday, April 20th, 2010|
Edgepark Medical Supplies
(Sorry guys but I'm going to xpost to insulin_whores)
I'm not staying silent about this any longer.
Edgepark Medical Supplies has HORRIBLE customer service. My old medical supply company, Providence Home Services, outsourced their insulin pump supplies to Edgepark. Since then, I have had numerous issues getting the correct item ordered, orders being processed and shipped, and getting items I don't use sent to me and billed to insurance when I didn't ask for them.
Often times, I have had to call back twice or three times to get orders fixed because the customer service didn't fix it the first time. I was a regular customer who ordered over the phone before I started ordering online. I made my first order online about 2 weeks ago and although I have a confirmation number, there is no record of the order and no Silhouette sets at my door.
Anyone else use Edgepark and have the same issues? I'm on a PPO insurance plan, does anyone have ideas for other medical supply companies to use? I'm burnt out on Edgepark and ready to switch.
Denise Crowder Current Mood: enraged
|Monday, April 19th, 2010|
Ok... I'm going to cross post this to insulin_whores diabetes
I was told 10 days ago by my jack ass of an endo that medicaid would ABSOLUTELY NOT!!!!
cover a pump.
(he also told me my a1c was unacceptable and I needed to be below 6.0. Mind you my last a1c was like... 7.4? or something close to that. This one was 6.4.. (sigh don't say YAY ME! it's because I go VERY VERY VERY low every day. and I'm totally hypo unaware so it's a fake number frankly).
Anyway. I went to my GP on Thursday because after my endo told me to me to add a third to my lantus 2x a day I decided he was quite likely the worst and stupidest and rudest endo I'd ever had. Saw my GP on Thursday. I asked her for her professional opinion on him. Explained (without exaggeration) what he'd said and showed her all my lab results.
She asked to see my blood sugars for the last few weeks (which I NEVER track but I randomly had) She saw there was no real trend to bottoming out (and fyi by bottoming out I don't mean hitting like 65. I mean hitting in the 40's or lower) Told her I don't feel them. She and I talked about going on a pump. I told her what the Endo said. She laughed and rolled her eyes.
Said she had all my labs and copies of BS's. Said she'd submit all info to Minimed and see what they thought because she wasn't 100% sure.
Minimed called me today. Talked about my blood sugars, hypo unaware, other stuff. Asked who my insurance was, gave her their name and told her what my endo said. She paused a long time and asked who he was. Gave his name. She sighed. and said "No, he's very very wrong. (my insurance) is actually REALLY good about covering pumps in my experience. If I had to guess I'd say they cover them about 90% of the time and cover CGMS about 50% of the time. The CGMS is determined on a case by case basis."
Asked which one they'll cover (I'm thinking it'll be whatever the cheapest one is...) Turns out they cover the NEWEST one:)
It's the Minimed Revel. However it JUST came out. Has ANYONE seen one? Touched one? Played with one? Taken one to dinner and dancing? There are NO reviews and though MiniMed's website is perfectly fine... I really want user feedback. I know it differs person to person but I'd like a normal person to give pros and cons or list any quirks... etc.
Thanks. Sorry this is so long:) I'm blahblahing because I'm SO FREAKING EXCITED that I can HOPEFULLY be covered very very soon. I'm so tired of being like 35 once or more a day.
(Plus NEW GEEKY TOY!!! EEEEEEE!!!) Current Mood: full
|Wednesday, March 24th, 2010|
Can someone explain how the new revel is different from the 522/722? I quickly scanned the information on their website, but nothing jumped out at me. thanks!
|Monday, March 22nd, 2010|
Health Care Bill - until age 26?
**Note, this is not a political post. Let's not
debate whether the bill is good, bad, or neither. I want this to be an informative
discussion, not a political one.
As you likely know, the President Obama is expected to sign the health care reform bill this week. I am interested in one particular aspect of this bill, which says that children will be able to remain on their parent's insurance until age 26. It was explained on CNN.com as "Insurers would be required to provide coverage for non-dependent children up to age 26." A WebMD FAQ about the bill says, "Starting this year, children up to age 26 would be allowed to remain on their parents' health plan." I've searched the countless news articles regarding this bill, but I can't find anything more specific. Does this part of the bill apply retroactively?
How will this affect children under age 26 who have already been kicked off their parents' plan (due to a previously-lower age cutoff)?
Why I am interested:
I am a 24-year old non-married grad student. I went to graduate school directly after college, and I was able to remain on my dad's insurance until age 23. After the insurance company booted me, my parents decided to pay for COBRA to extend my coverage, as it was the most cost-effective way to keep me insured (factoring in co-pays, deductibles, pharmacy plan, etc). Still, COBRA costs around $6000 a year (gross, but much cheaper than paying for all that out-of-pocket).
Once this bill goes into effect, will I be able to hop back onto my dad's plan until I turn 26?
I don't believe I'm eligible for the high-risk pool (another component of the bill) because I have had consistent insurance coverage my entire life. (Everything I've read about the pre-existing condition high-risk pool requires that you have been without insurance coverage for the last 6 months.)
Again, I don't want this to turn into a political debate. I just am wondering if anyone has a better grasp of how this part of the bill will affect people in my situation.
|Friday, March 5th, 2010|
Hi, I'm being very lazy... so I'm hoping someone here will help me out so i dont have dig out my pump book to look this up for myself :)
last time i went to the endo she changed my pump settings from a carb ratio of 12:1 to 10:1. this ration is totally NOT WORKING and im going low ALL.THE.TIME. I want to change the ratio back to 12:1... but i have no idea how to do that.
I'm using a Minimed Paradigm 722.
thank you thank you :)
|Thursday, January 21st, 2010|
|Thursday, November 26th, 2009|
|Monday, November 23rd, 2009|
|Thursday, November 5th, 2009|
venting. also - advice? (crossposted)
(this got kind of long. sorry!)
My endo (who was new-to-me last spring and who I've never been entirely sure I liked) and I have been doing some PCOS/fertility related tests, because I want to know if I even have the option of being pregnant someday. Before these testes, we did some intensive diabetes-management work, and established that my control is probably good enough to get me through a pregnancy, even though it will not be the most fun thing I've ever done in my life. Point being, she's very aware that I'm a Type 1 diabetic.
One of the tests she's having me do involves taking 5mg of Dexamethason 4x/day for 5 days. (n.b. I was supposed to do this test in September, but she sent me the scrip and the instructions via snail mail, and I couldn't decipher her Hebrew scrawl. I called her office to say ???, and asked her to call me back and tell me what to do. When she called me, she didn't have my file open and thus gave me the wrong instructions, so I took one pill and then got the bloodwork done, which was not what I was supposed to do at all.
So now, I'm doing it right (I started on Tuesday), and I have discovered yesterday that the build-up of this stuff is sending my blood sugar through the roof. So badly that I thought I was having a pump malfunction yesterday afternoon, and so badly that I was up until 1am last night, waiting to see if my blood sugar would come down from 300mg/dl. I went to bed with it at 270 (at least it was going in the right direction) and at 6 I was at 180. I did some googling, and it's clear that this stuff has been shown to raise blood sugar levels in some cases, which is the kind of thing you'd expect an endo to think about/warn for when prescribing it to an insulin-dependent diabetic, no?
I've already taken my pill for this morning, but I'm seriously tempted to scrap this part of the project. In addition to the giant scary health risks that come with this kind of hyperglycemia, I don't like feeling vaguely nauseated all the time, especially on a day like to day when I have to take multiple intra- and inter-city buses. But, I hate not doing what doctors tell me to do, and I'm already almost halfway through the stupid test, so there's part of me that just thinks I should suck it up. I'm conflicted, and I hate feeling conflicted.
(I mean, I guess I could just eat no carbs at all for the next three days and see what happens...ok, no. BAD IDEA BEARS GET AWAY FROM ME.)
Have any of you ever done the PCOS/Type 1 balancing act? Been asked to do a version of this test? Have any advice?
|Tuesday, November 3rd, 2009|
Speaking of Lantus
I was reading the last post about no longer having insulin etc etc and all the recommendations for Lantus. My doc has always told me to get Lantus because my pump (several different versions/upgrades of it) has died on me/malfunctioned several times in the 8 years I've been on it. I did as was told and store it in the fridge...
...until I realized one day that I was never informed on how to actually use it, thusly making it useless.
And by that I mean, is there a formula (as there usual is strange formulas in diabetic insulin ratios) that one uses to convert pump units (bolus/basal) to how much Lantus one should inject? And I'm told it's 24 hours, but is that then safe to assume I give myself one shot in the morning for long lasting and againg at the same time the next day?
so many questions! Share with me your wisdoms of the Lantus! :) Current Mood: curious
|Wednesday, October 28th, 2009|
So, I'm a type 1 diabetic with an insulin pump. I live in Ontario, Canada. My insulin pump, insulin and all pump supplies were covered 100% by benefits through my work. The government now has this ADP program where they give you $2400 a year to pay for Insulin pump supplies. A $600 cheque comes every 3 (or 4 I can't remember) months in the mail. I deposit the cheque and buy my supplies. The supplies usually cost more than $600. So now I'm out money. I call my benefits company and the person there told me that Manulife will pay the extra amount over $600 but I need to get a letter from the ADP program stating that I've used up all their coverage. So, I call the ADP people - who, by the way, are extrememly hard to get a hold of - and they say that I need to fax them my bills and my health card number and some other stuff. They will then send me a letter, which I need to forward to my insurance company.
For the love of god. I get that the program is there to help people out and that many people aren't as lucky as I am and don't have benefits that help pay for this stuff. But I miss the old days where I pay, submit a reciept and then get the money deposited into my account.
Has anyone had to do this yet? Was it as easy as they are trying to get me to believe? Honestly, I have 6 months worth of bills that I need to submit and I'm putting it off b/c I think it's just going to be a huge pain in the ass!!
x-posted to other communities.